Sick Baby - Part 4
**Originally posted November 12th, 2005.**
Whew. What a long week.
Thank you all for your well wishes and prayers. They worked.
So far the diagnosis is severe GERD (gastro-esophogeal reflux disease). I'll take that. I can deal with the Prilosec twice a day until further notice. It could be up to two years or more.
On Wednesday, they scoped him under general anesthetic. That was absolutely the worst. All looked good anatomically, and there was healing irritation. They did a bunch of biopsies to test for allergies. I'll find out the results of that on Monday.
Honestly, at this point, I think that he is just extremely sensitive and needed the three days without food to rest his digestive tract and heal. There is nothing worse than watching your child waste away because he won't eat because he's in so much pain, but I think we have turned the corner with getting the acid under control.
He's doing very well and is actually acting like a baby now. This morning he woke up and entertained himself with his fingers for about a half an hour without screaming. I can change his diaper without him screaming. He sleeps and wakes up without screaming. He'll eat and not scream. He'll quiet down with me just picking him up. He's never done that before. It's such a blessing to have a baby at last.
He gets 1.5 ml of Prilosec twice a day to stop the acid. He has to sleep on his side or his tummy propped at a 30 degree angle. He must remain upright for 60 minutes after a feed. I can't put any pressure on his tummy and he can't be in his carseat for longer than necessary or his bouncy seat at all because it will cruch his little tummy up. I have to record how much food he got when, all his diapers and any choking episodes. We have to brush up on our infant CPR as this now becomes part of the equasion.
For now he is getting my milk with Good Start formula mixed in to bump the calories. This bumps the calories from 20 per ounce to 24 per ounce so I can get the weight back on him. At least he's back to 6-1/2 pounds, but that's just too tiny for a 7 week old child. He needs to fatten up! If he starts vomiting again, I'm supposed to thicken the milk with rice cereal, but I hope it doesn't go that direction.
This has been very difficult, but the support here is awesome. Thank you.
Here's to healthy, growing babies!
Whew. What a long week.
Thank you all for your well wishes and prayers. They worked.
So far the diagnosis is severe GERD (gastro-esophogeal reflux disease). I'll take that. I can deal with the Prilosec twice a day until further notice. It could be up to two years or more.
On Wednesday, they scoped him under general anesthetic. That was absolutely the worst. All looked good anatomically, and there was healing irritation. They did a bunch of biopsies to test for allergies. I'll find out the results of that on Monday.
Honestly, at this point, I think that he is just extremely sensitive and needed the three days without food to rest his digestive tract and heal. There is nothing worse than watching your child waste away because he won't eat because he's in so much pain, but I think we have turned the corner with getting the acid under control.
He's doing very well and is actually acting like a baby now. This morning he woke up and entertained himself with his fingers for about a half an hour without screaming. I can change his diaper without him screaming. He sleeps and wakes up without screaming. He'll eat and not scream. He'll quiet down with me just picking him up. He's never done that before. It's such a blessing to have a baby at last.
He gets 1.5 ml of Prilosec twice a day to stop the acid. He has to sleep on his side or his tummy propped at a 30 degree angle. He must remain upright for 60 minutes after a feed. I can't put any pressure on his tummy and he can't be in his carseat for longer than necessary or his bouncy seat at all because it will cruch his little tummy up. I have to record how much food he got when, all his diapers and any choking episodes. We have to brush up on our infant CPR as this now becomes part of the equasion.
For now he is getting my milk with Good Start formula mixed in to bump the calories. This bumps the calories from 20 per ounce to 24 per ounce so I can get the weight back on him. At least he's back to 6-1/2 pounds, but that's just too tiny for a 7 week old child. He needs to fatten up! If he starts vomiting again, I'm supposed to thicken the milk with rice cereal, but I hope it doesn't go that direction.
This has been very difficult, but the support here is awesome. Thank you.
Here's to healthy, growing babies!
1 Comments:
This parenting thing is one of the toughest yet most rewarding parts of our lives.
I hope this is as bad as it EVER gets and that it is nothing but good from here on out for all of you!
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