Sick baby - Part 2
**Originally written on November 8th, 2005.**
They ran the Upper GI yesterday and did an ultrasound. They found they his Pyloric valve is at the very upper range of normal and will probably re-check it in a week to see if it has thickened more. If it has, they will probably do surgery.
He also has extremely bad reflux. Like scary bad reflux. Not within normal limits. It was amazing how much came back up. His poor litle esophagus is eroded and it hurts! This can be corrected by surgery as well, but this is a more major surgery and the probably won't do it because it's considered a surgery of last resort. Good Lord, how last resort do we have to be, how much weight does he have to loose, how much screaming does he have to do, how little does he have to eat to consider it last resort?
He hasn't had a full feed since 11:00 on Saturday and won't eat now - it's Tuesday. They had me try to breast feed. We got about two to three minutes worth of milk down him and then he screamed for 4 hours straight from the pain. His voice sounds so raspy from screaming so much. It's so sad.
He is now NPO (nothing by mouth) until further notice. The only time he is peaceful and quiet is when his system is completely empty.
The on-call doctor finally sent me home to sleep last night as I'm on the verge of a complete break-down. I've been pretty much asleep for the past 12 hours. I'm going to try to get a bit more sleep now and go in later.
This is so difficult. I caught wind of them wanting to send him home because "it's just reflux". How am I going to care for a constantly screaming child who won't eat? He won't get the fluids or nutrition he needs because I won't have an IV at home! He's going to loose the weight we worked so hard to put on him. He's already lost quite a bit and is back down to around 6 pounds. That's too small for a 7 week old child. This is nuts.
I have no idea what to do and I swear I'm going to loose it. I'm trying so hard to be strong, but even I have my limits. I've darn near reached it. I want him fixed and I want him home.
I just called and talked to his nurse, and they are doing a GI consult today. We'll see what happens.
I'll update tomorrow.
Thanks for all of your support. I truly appreciate it.
They ran the Upper GI yesterday and did an ultrasound. They found they his Pyloric valve is at the very upper range of normal and will probably re-check it in a week to see if it has thickened more. If it has, they will probably do surgery.
He also has extremely bad reflux. Like scary bad reflux. Not within normal limits. It was amazing how much came back up. His poor litle esophagus is eroded and it hurts! This can be corrected by surgery as well, but this is a more major surgery and the probably won't do it because it's considered a surgery of last resort. Good Lord, how last resort do we have to be, how much weight does he have to loose, how much screaming does he have to do, how little does he have to eat to consider it last resort?
He hasn't had a full feed since 11:00 on Saturday and won't eat now - it's Tuesday. They had me try to breast feed. We got about two to three minutes worth of milk down him and then he screamed for 4 hours straight from the pain. His voice sounds so raspy from screaming so much. It's so sad.
He is now NPO (nothing by mouth) until further notice. The only time he is peaceful and quiet is when his system is completely empty.
The on-call doctor finally sent me home to sleep last night as I'm on the verge of a complete break-down. I've been pretty much asleep for the past 12 hours. I'm going to try to get a bit more sleep now and go in later.
This is so difficult. I caught wind of them wanting to send him home because "it's just reflux". How am I going to care for a constantly screaming child who won't eat? He won't get the fluids or nutrition he needs because I won't have an IV at home! He's going to loose the weight we worked so hard to put on him. He's already lost quite a bit and is back down to around 6 pounds. That's too small for a 7 week old child. This is nuts.
I have no idea what to do and I swear I'm going to loose it. I'm trying so hard to be strong, but even I have my limits. I've darn near reached it. I want him fixed and I want him home.
I just called and talked to his nurse, and they are doing a GI consult today. We'll see what happens.
I'll update tomorrow.
Thanks for all of your support. I truly appreciate it.
posted by Mama Moon | 10:44 AM
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