Sick Baby - Part 3
**Originally posted on November 8th, 2005.**
I found out that the doc who was saying that "it's only reflux and they will send you home" was the night on-call doc and she had no idea what we had been through and all of the details of his case. She can take a flying leap off a cliff for all I care.
I spoke with Payton's primary care physician today and he said there is no way they will send him home until they figure out what is going on. He's lost a half a pound since Saturday and that is a huge deal for a baby his size. He goes nowhere until he gains some of it back and keeps gaining and can feed on a regular basis without screaming.
He had his GI consult today and they spent about an hour and a half asking questions and poking about. He's getting another ultrasound tomorrrow looking for something neurological in his spine and also a scope test to look for anatomical abnormalities in his GI tract. If the esophagus is damaged, they will give him an NG tube to feed him so he can heal.
They are looking for things like pancreatitis, something metabolic, enzymatic or anatomical. They are covering all the bases they can. I have been asking lots of questions and I feel much better about the course of action that has been taking place. It just takes time. All of his doctors are very concerned about him and are doing everything in their power to fix him.
He's been eating a bit - they are trying him on a hypo-allergenic formula to see if he may be reacting to something in my breast milk. I got 15, then 20 then 8 ml's down him over the course of about three hours. He still fussed, so I'm not sure that it's that, but we'll see. This is the most he has eaten since Saturday.
I did find out that the surgery for the reflux is "last resort" because it is considered a major surgery. He would have to have a drainage tube sticking out of his chest for a week and they would have to slice away part of his stomach to wrap it around the base of the esophagus to tighten the valve. Yikes.
I do feel better today, but it has been extremely difficult. The doctors are hoping to have a concrete diagnosis by Thursday. These things just take more time with a little baby.
I'll update again when I find out what is going on.
I found out that the doc who was saying that "it's only reflux and they will send you home" was the night on-call doc and she had no idea what we had been through and all of the details of his case. She can take a flying leap off a cliff for all I care.
I spoke with Payton's primary care physician today and he said there is no way they will send him home until they figure out what is going on. He's lost a half a pound since Saturday and that is a huge deal for a baby his size. He goes nowhere until he gains some of it back and keeps gaining and can feed on a regular basis without screaming.
He had his GI consult today and they spent about an hour and a half asking questions and poking about. He's getting another ultrasound tomorrrow looking for something neurological in his spine and also a scope test to look for anatomical abnormalities in his GI tract. If the esophagus is damaged, they will give him an NG tube to feed him so he can heal.
They are looking for things like pancreatitis, something metabolic, enzymatic or anatomical. They are covering all the bases they can. I have been asking lots of questions and I feel much better about the course of action that has been taking place. It just takes time. All of his doctors are very concerned about him and are doing everything in their power to fix him.
He's been eating a bit - they are trying him on a hypo-allergenic formula to see if he may be reacting to something in my breast milk. I got 15, then 20 then 8 ml's down him over the course of about three hours. He still fussed, so I'm not sure that it's that, but we'll see. This is the most he has eaten since Saturday.
I did find out that the surgery for the reflux is "last resort" because it is considered a major surgery. He would have to have a drainage tube sticking out of his chest for a week and they would have to slice away part of his stomach to wrap it around the base of the esophagus to tighten the valve. Yikes.
I do feel better today, but it has been extremely difficult. The doctors are hoping to have a concrete diagnosis by Thursday. These things just take more time with a little baby.
I'll update again when I find out what is going on.
posted by Mama Moon | 10:45 AM
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